This year marks the 25th anniversary since the late patient and staunch advocate, Thomas (Tom) Hennessy Jr,  designated May 12th as the international awareness day.

May 12 was chosen as International Awareness Day for Complex Immunological and Neurological Diseases (C.I.N.D.) since 1992.

The diseases included in C.I.N.D., such as Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Chronic Lyme Disease (CLD), Fibromyalgia (FM), Gulf War Illness (GWI), Multiple Chemical Sensitivity (MCS) and now includes Post-sepsis syndrome.

Tom designated May 12 as the special day to memorialize the birthdate of Florence Nightingale, the English army nurse who inspired the founding of the International Red Cross. Nightingale contracted a paralyzing CIND-like illness and became chronically ill. She spent the last 50 years of her life virtually bedridden, and despite being severely debilitated, started the world’s first school of nursing.


The reason to raise awareness for any disease is self explanatory.  Patients suffering from misunderstood and neglected diseases, such as the CIND diseases (many similar to Post-sepsis syndrome, Google it and read the symptoms), have an added urgency to educate about the disease and raise awareness of the needs of its millions of sufferers.  Patients suffering from debilitating neuro-immune disease have an added challenge of educating about the different "labels", name and definition of the disease.


Tom Hennessy understood that it was the government-constructed demeaning names and faulty criteria that were holding back good science which was the cause of too many early deaths and prolonged suffering for millions of patients worldwide.


Social Media Profile Picture Overlays - Easy Way to Create May Awareness for ME, CFS, Lyme, GWI, FM and MCS.

Worldwide May Awareness 2017

Event list courtesy of (Canadian site)

Lyme Events List - 

What Is Lyme Disease Website


ME/CFS Events List - (Canadian site)



United States (US)


USA May 12 MECFS Awareness Day Light Up the Night Campaign










Northern Ireland




Republic of Ireland


South Africa











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We MUST reach "the tipping point" to get the majority of PEOPLE on board with our AWARENESS CAMPAIGN!

NO ONE ELSE should have to suffer with these wretched NON DISCRIMINATORY DISEASES.

Protect the children.

The entire month of May is now dedicated as AWARENESS month for those who suffer from CIND's.
*Including Myalgic Encephalomyelitis (ME) & chronic Lyme Disease (CLD).

Some ways of promoting Awareness Day is to phone, e-mail, and/or fax to politicians, news media and public health officials.

We should plan a coordinated RALLY/ ACTIONS in many locations ALL over the World and invite the news media!

Let's take this a step further & INVITE:

The Girl Scouts, Boy Scouts, Legions, Universities, Colleges, schools, International or American Camp(ing) Associations, Attorneys, Veterans, Veterinarians, Pharmacists, doctors, nurses, cosmetologists, barbers, teachers, students, physical trainers, blood banks, etc..

ACTION/RALLY/ PROTESTS at the following:

  • government health offices
  • major cities, state capitols, provinces, regions
  • hospitals, clinics, malls, farmer's market,
  • protest from bed if necessary, even if the protest is only one person
  • on-line by recording and putting the video on YouTube

That way we make a huge splash.

First day local (either May 10, or May 11th ~or whatever day is best for your location!) ~ in person, and the second day global and on the internet!

Using visual aids like:

  • Picket signs, brochures
  • wearing t-shirts, buttons or ribbons
  • wearing prison clothes (trapped in our own bodies with shackles)
  • canes, walkers, wheelchairs, motor scooters
  • beds, blankets, pillows, sunglasses, ice packs, heating pads
  • sacks with our meds & supplements, side walk chalk outlines, or a casket (with names of those deceased)
  • mannequins (for those who are unable to attend, with attached picture/statement of someone who is bedbound/housebound & can't make it)
  • tent or cardboard box house (for those who lost their home due to illness)
  • human hamster ball (like living life in a bubble)
  • tie ribbons to visible trees, mailboxes or doors
  • yard signs, wristbands
  • carry ketchup in ziplock baggies to simulate BLOOD & ANYTHING else we can DO to GET THE WORLD's ATTENTION!!!!