This year marks the 25th anniversary since the late patient and staunch advocate, Thomas (Tom) Hennessy Jr, designated May 12th as the international awareness day.
May 12 was chosen as International Awareness Day for Complex Immunological and Neurological Diseases (C.I.N.D.) since 1992.
The diseases included in C.I.N.D., such as Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Chronic Lyme Disease (CLD), Fibromyalgia (FM), Gulf War Illness (GWI), Multiple Chemical Sensitivity (MCS) and now includes Post-sepsis syndrome.
Tom designated May 12 as the special day to memorialize the birthdate of Florence Nightingale, the English army nurse who inspired the founding of the International Red Cross. Nightingale contracted a paralyzing CIND-like illness and became chronically ill. She spent the last 50 years of her life virtually bedridden, and despite being severely debilitated, started the world’s first school of nursing.
The reason to raise awareness for any disease is self explanatory. Patients suffering from misunderstood and neglected diseases, such as the CIND diseases (many similar to Post-sepsis syndrome, Google it and read the symptoms), have an added urgency to educate about the disease and raise awareness of the needs of its millions of sufferers. Patients suffering from debilitating neuro-immune disease have an added challenge of educating about the different "labels", name and definition of the disease.
Tom Hennessy understood that it was the government-constructed demeaning names and faulty criteria that were holding back good science which was the cause of too many early deaths and prolonged suffering for millions of patients worldwide.
Social Media Profile Picture Overlays - Easy Way to Create May Awareness for ME, CFS, Lyme, GWI, FM and MCS.
Worldwide May Awareness 2017
Event list courtesy of May12th.org (Canadian site)
Lyme Events List -
What Is Lyme Disease Website
ME/CFS Events List -
May12th.org (Canadian site)
United States (US)
USA May 12 MECFS Awareness Day Light Up the Night Campaign
Republic of Ireland